Timothy, My Son . . .

Why, O God? Suffering and Disability in the Bible and Church

2011-08-10T21:13:00.002-04:00

I recently began reading the newly-released book entitled Why, O God? Suffering and Disability in the Bible and Church (Crossway, 2011). Edited by Larry J. Waters and Roy B. Zuck, this collection of essays (written by people ranging from Joni Eareckson Tada and others living with disabilities, to seminary professors, ministry leaders, and medical professionals) promises to not only offer a biblical perspective on suffering and disability but also to put forward a vision entailing how those who experience such challenges are to minister and to be ministered to in and through the local church. So far, the book is delivering on its promise!

I've decided to periodically post a few meaningful quotes from Why, O God?. Here are three, written by Joni Eareckson Tada, which hit me between the eyes last night. Enjoy . . .

People with disabilities are driven to the cross by the overwhelming conviction that they have no other place to go. (Page 18)

Disability ministry is a means of showcasing redemption to everyone, helping them learn how to respond to their own afflictions as well as helping them understand God's motives in their suffering. (Page 20)

[An anticipated conversation between Joni and Jesus upon her entrance into heaven] “Lord Jesus, do you see that wheelchair over there? Well, you were right. When you put me in it, it was a lot of trouble. But the weaker I was in that thing, the harder I lean on you. And the harder I lean on you, the stronger I discovered you to be. I do not think I would ever have known the glory of your grace were it not for the weakness of that wheelchair. So thank you, Lord Jesus, for that. Now, if you like, you can send that thing off to hell.” (Page 324)

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Don't forget to consider giving or spreading the word about helping me run a marathon for special needs families! Simply click HERE to learn more.

Help Me Run A Marathon For Special Needs Families

2011-08-09T07:18:00.004-04:00

Being a dad who has been given the privilege of raising a son considered to have special needs, I have witnessed first-hand both the unique blessings and challenges among many families affected by disabilities.

While the needs are great, I know the grace of God to be far greater.

The Elisha Foundation is uniquely positioned to come alongside families affected by special needs, pointing them to the sovereignty and goodness of God found only in the Gospel. Valuing their efforts, I'd like to do what I can to support The Elisha Foundation in reaching into the special needs community with the good news of Jesus.

So here's the plan . . .

I'll work to run a marathon on October 16th (Columbus Marathon). You offer encouragement by giving to The Elisha Foundation in support of families affected by special needs.

You'll win by giving. The Elisha Foundation will win by being supported. Families will win by being encouraged and strengthened in Christ. I'll be doing good just to finish!

So would you consider giving or spreading the word? Simply click HERE to do either.

To learn more about The Elisha Foundation's strategy of partnering with gospel-centered churches to provide local respite care, host regional retreats, and serve the disabled internationally, please visit their website.

Thank you for considering this . . .

Timothy's Sister Goes To Camp

2011-07-16T21:03:00.002-04:00

Timothy's big sister went off to camp . . . so Timothy and I are having an All-Man Weekend.

We've napped. Watched movies. Went fishing. OK, so truth be told, Timothy's mom (who went with us) was the only one to catch anything.

As my daughter left for camp, I wrote this letter to her and tossed it in her bag. I'm hoping she found it . . . and more importantly . . . I'm hoping she's having a GREAT time.

Dear Anna Ritchie,

Well, girlfriend . . . you’re at camp! Wahoo!!!! I am so excited for you, and I can’t wait to hear about all you did and all you discovered!

You are simply THE BEST daughter any dad could EVER, EVER have . . . and I can’t believe that out of all the dads in the world God could have chosen to be your dad . . . He chose ME! Wow!!! What a gift of grace you are.

As you start camp, the best thing I could say to you is this . . . trust God.

If you get a little nervous . . . relax, God is with you! Trust Him.
If someone needs a friend . . . let Him love others through you! Trust Him.
When the shaving cream and slime starts to fly everywhere . . . have fun and get messy, knowing God enjoys seeing you laugh and carry on! Trust Him.
When you are singing . . . sing loudly and freely, knowing He has created you to worship Him! Trust Him.
When you are given opportunities to learn about who Jesus is and what He has done for you . . . open up your heart and mind to Him! Trust Him.

Anna Ritchie . . . you have a Father in heaven . . . and a father on earth who are both CRAZY about you! Rest in His love and mine . . . and have an exhausting, slimy, wet, loud, FUN time!

Your mom, brother, and I will be praying for you many times each and every day!

I love you,

Dad

P.S. – Mr. Knuckles can be there in 30 minutes if you need him.

P.S.S. – You don’t mind if I throw in an extra $5 do you?

“God’s power has given us everything we need to lead a godly life.” - 2 Peter 1:3

[For explanation, "Mr. Knuckles" is my five fingered friend who lives at the end of my right arm who is always willing to meet a boy who should come around! It's a running joke between me and my daughter -- at least she thinks it is a joke.]

Wa'ad & Fareeda

2011-07-04T23:29:00.003-04:00

While Timothy and I were in Philadelphia for a recent round of appointments at Shriner's, we were able to meet a little girl named Fareeda. Our meeting late one night at the Ronald McDonald House was one I will not soon forget.

Fareeda (6 years old) arrived from Afghanistan with her father after Marines discovered her living in a remote village with a severe arm and hand deformity. With help from Global Medical Relief Fund, along with the amazing folks at Shriner's, Fareeda was able to receive reconstructive surgery from Timothy's hand surgeon, Dr. Scott Kozin.

As Fareeda's travelling escort said to me, "She needed the best hand surgeon in the world, and we were led to Dr. Kozin."

I offered reassurance, as they were led well. We think the world of the entire team at Shriner's.

Interestingly, there was a recent 60 Minutes story about another child who was treated by Shriner's along with other hospitals after unsuspectingly kicking a bomb contained in a soda bottle. The Global Medical Relief Fund made his treatment possible.

Take a moment to learn about Wa'ad and his recent journey . . . and pray for both Wa'ad and Fareeda.

Publish Post

All Boy

2011-06-18T22:03:00.003-04:00

These photos just shout . . . "I'm a boy!"

A Few Photos

2011-06-18T21:29:00.005-04:00

It's been a while since I have included any pictures of Timothy, so here are a bunch of random ones from the earlier this year, including:

Timothy at Bristol Motor Speedway. His favorite car . . . the #18 with the big M&M's on the hood!
Timothy checking out the new chicken coop. Yes, we now own chickens -- three to be exact. I've never even touched a chicken (that is, one that isn't fried and on a bun) before we bought them. Sally, Rose, and Nugget (I named that one -- I'm the realist in the family) have provided hours of entertainment! We're still waiting for them to provide us with eggs.
Timothy playing soccer. So fun to watch kids play at this age, and Timothy was no exception. He scored on goal on the season and seemed to keep up as best he could, although his legs would tire easily.
Timothy hitting the waves. Timothy is an absolute WILD MAN when it comes to the ocean. He'd get pounded by the surf and turn around for more.
Timothy graduating. Waving to the crowd . . .

Interviews With John Knight On Disability

2011-06-01T10:18:00.000-04:00

This is worth a look . . . John Piper Interviews John Knight on Disability

99 Balloons

2011-05-25T13:36:00.002-04:00

What a brave, truth-filled perspective on life and death! God's grace is overwhelming.

99 Balloons from Igniter Media on Vimeo.

What Is Right With Our Son

2011-05-24T22:24:00.004-04:00

This video captures why I know Wrestling With An Angel to be the best book I know of on walking with Jesus . . . and a child with disabilities.

Link to video is here.

"We may not fully know what is wrong with our son, but I think we have discovered what is right with him."

"Surrender all of your strength for all of His grace."

I Cling To My Jesus

2011-03-05T08:53:00.002-05:00

A powerful testimony of a family walking through disability and cancer.

John Knight (father): “I have a little boy who is blind and has Autism and growth hormone deficiency. He doesn’t eat well or sleep well. My wife lives with stage four cancer in her body. I have a hope and I have a future. I have a Rock. I cling to my Jesus.”

This was grace - short film from Andrew Laparra on Vimeo.

No Parking On The Dance Floor

2011-01-21T18:25:00.004-05:00

They said he might not be able to walk; however, they never told us he wouldn't be able to dance! Lord help him . . .

Still . . . T-man cracks me up with his latest moves.

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Duck Sliding

2011-01-16T20:11:00.000-05:00

Timothy and I had a guys afternoon and discovered a new sport . . . Duck Sliding.

We took some bread down to a pond near our house to feed the ducks. Upon arrival, we found the pond mostly frozen over. All the resident ducks were huddled together, swimming in a lone patch of unfrozen water.

Timothy quickly discovered that by throwing bread on the frozen sections of the pond, he could not only coax the ducks out of the water . . . but he could cause the ducks to slide uncontrollably as they raced to the bread.

Duck Sliding was born.

(Disclaimer: No ducks were harmed in the playing of this sport.)

A New Venture

2011-01-10T19:43:00.006-05:00

Over the past few months, I've been contemplating a new venture. After 5 years and 300 blog posts . . . it's time for a change.

A new blog. Let me explain . . .

Timothy My Son was started the day our son was born and discovered to have some type of "genetic anomaly". With nothing more than a fuzzy label and a broken heart, my wife and I tasted weakness like never before. Those were scary yet refining days.

Over the months and years that followed, God fulfilled beyond measure the words of 1 Corinthians 4:17 (the theme verse of this blog):

"I am sending to you Timothy, my son whom I love. He will remind you of my way of life in Christ Jesus."

Our son, Timothy, has been used by God to teach us and remind us of what it means to posses life in Christ. Indeed, Christ is most precious when Christ is all you have. Through our son, our Father has uniquely brought us to that place where He is all we have . . . and He is all we need. For that, my wife and I are forever grateful to our gracious God.

And oh the lessons learned. Providence. Friendship. Love. Grace. Generosity. Brokenness. Grace. Sacrifice. Boldness. Grace. Joy. Humility. Family. Dependence. Did I mention grace?

Needless to say, these lessons are in need of repeating daily. That's where the grace comes in!

Nevertheless, in a sense, I feel as though God has grown my heart beyond the scope of what He is doing in and through our son. Over these years, He has grown me in a renewed and deeply-rooted passion for what He has already done through His son.

Hence, a new blog. The Gospel. {period}

You see, when it is all said and done . . . it is only the Gospel that counts. In short, I desire to point myself and others to what matters most -- Jesus Christ and him crucified. You can read more as to why I'm specifically starting this blog, but in the end, it really is about the Gospel. Period.

If you would like to subscribe to this new blog, you can do so by email or by RSS feed. (If you have no idea what an RSS feed is, you can read more here.)

As for Timothy My Son, I will still post updates on Timothy from time to time, as there will be future surgeries and significant events in his life. Beyond keeping people up to date with what God is doing through Timothy, his blog has proven to be a valuable tool to meet and advocate for other families who are affected by Beal's and various other special needs. Furthermore, our son does far too many hysterical things to not have a forum in which to share them!

May He be honored . . .

Medical Visits Complete

2010-12-10T16:20:00.003-05:00

It seems we are entering into a new season of Timothy's care, which appears to be for the better.

Today, we met with Timothy's primary neurosurgeon and Timothy's lower extremity orthopedic. Two fine men. Two excellent doctors.

Timothy's lower extremity doctor said Timothy's middle toe (which was fused a few months ago) looks wonderful. He finally revealed he had some concerns as to how it would actually heal, but commented it could not have healed any better than it did. Remarkably, Timothy's middle toe is the straightest part of his entire body!

A few adjustments to his orthotics, a quick check on his hips and knees, and Timothy was sent on his way. All clear for six months until he has a routine check-in.

Next up: spine. X-rays revealed Timothy's two curves are still present but not progressing. The curve below where Timothy's spine was fused has a curve which causes Timothy to pitch slightly forward just above the hips. Nothing too major, and as long as it holds as is, once Timothy is done growing, we could opt to go in an straighten things out a bit more.

As to the scoliosis in his upper spine, it is holding at approximately 37 degrees. Although in a precarious location, it is not affecting Timothy's lung function in any way. Should this curve not worsen, Timothy will not need any surgical correction.

Should this curve increase (which it has not shown signs of doing so thus far) and approach 50 degrees, then we will be in for quite a ride. At that point, Timothy will require many surgeries over a four year period. Should this be needed, the older Timothy is the better.

As Timothy's surgeon said, "I'd rather not go that route if I don't have to." I agree!

The immediate take away is simple. All looks good, Timothy is cleared (and encouraged) to play sports, and no additional care is required. We will need to return every six months for x-rays and a round of check-ins with all of Timothy's doctors.

For the first time since our son has been born, there are no confirmed surgeries on the horizon, as some level of a "routine" schedule is being foreseen. Sure, things could change, but we are grateful for the lull.

Needless to say, we will be praying for Timothy's spine to stay put!

Fire!

2010-12-09T20:29:00.001-05:00

Excitement at the Ronald McDonald House! Washer started smoking on the second floor. Everybody out!

Bad dad I was. Didn't even grab Timothy shoes or a coat as we head out into the cold night.

I was redeemed. Timothy got to sit in Engine 55 with his new pals.

All clear. No damage (other than the washer). Going to bed!

One Last Christmas

2010-12-07T16:18:00.002-05:00

On Thursday, Timothy and I will head to Philly for a round of spine and lower extremity appointments. Timothy is so blessed to receive such wonderful, expert care from the folks at Shriner's. Additionally, we have been humbled and grateful for the many nights we have called the Ronald McDonald House home.

While we are not anticipating news of any imminent surgical procedures (although this could end up being the case), one thing I am certain of is the opportunity to meet many other families facing far greater difficulties with their children this Christmas season.

A sudden diagnosis of cancer. A rare heart condition requiring experimental surgery. Spinal cord trauma. Third-degree burns. The list goes on and on . . .

Would you join me in simply praying for families who are facing these and other challenges? Perhaps you would consider being used to personally encourage and serve such a family who is within your circle of influence?

Additionally, would you be willing to take a moment to pray for those who have lost a child this year? This season, marked by joy, can be exceptionally difficult for many.

In considering the above today, I came across this music video by Matthew West. The song is entitled, "One Last Christmas" and tells the story of a little boy named Dax Locke . . . and the community that stood behind both he and his family. May all who watch be humbled and hope-filled.

Jesus is greater still.

Email subscribers go to http://youtu.be/Ye39mgcHC3E

Happy Vestival!

2010-12-03T19:43:00.000-05:00

For those of us who are proud to rock the sweater vest, today marks an international holiday. You see, today is Sweater Vestival!

Each year on the second Friday after Thanksgiving, the annual celebration of solidarity, superiority, and sartorial splendor found in vest wearing takes place. Non-vest wearers are encouraged to indulge in the simple pleasure of the sleeveless garment.

If you think I'm making this up, think again . . .

www.sweatervestival.com

Happy Vestival.

Timothy's Holy Hip Hop Party

2010-11-13T20:10:00.010-05:00

Was choppin' it up in the crib with a little holy hip hop (courtesy of Hazakim's "The Good News"), when Little T decided to thrown down.

He definitely got my dancing genes or lack thereof.

Oh well. Regardless . . . you go T. Rep the King. Peace out.

(Email subscribers go to http://youtu.be/_OFT5OYfRPg)

Race Weekend Complete

2010-10-20T19:13:00.005-04:00

After running for twenty-six and two-tenths of a mile, I finally reached the finish line. Mission accomplished. Columbus Marathon completed.

The high points of the weekend were many:

Seeing my son and daughter run in their own races the day before the marathon . . .

Kissing my wife and daughter goodbye at the starting line . . .

Having them hand me supplies along the way . . .

Finding my mom, her husband, and a childhood friend along the course . . . there rooting me on!

Hitting mile 26, seeing the finish line, and having a great arrangement of Amazing Grace come through on the headphones . . .

And of course, crossing the line and handing off the medal to my daughter!

All that being said, with the highs come the lows:

Shortly after crossing the halfway mark in the race, I saw the the winning runner heading to the finish line. I chose to process this fact in the following manner: He only ran half as long as I did. He let up while I was still going strong. Works for me.

Never mind he won $2500 and a chance to qualify for the 2012 Olympic team.

And then there was mile 25 . . . well, make that mile 24. I had lost count of the miles along the course, and while I was anticipating the mile 25 marker, I came to the bottom of a hill and was met with the number 24 and an uphill climb. Psychologically I had gained an uphill mile I was not expecting. Ugg. Fortunately, the sign that read, "Run! Chuck Norris is chasing you!" gave me the extra boost I needed.

All in all . . . I enjoyed the weekend with family (thanks Grandma and Bob for all you did in hosting us), and I'd sign up to do it again! That is, once everything below my chin ceases from cramping and I am able to go up stairs without leaning on a railing.

Columbus Marathon

2010-10-15T21:46:00.004-04:00

On Sunday, I'm doing something I haven't done in eleven years: complete a marathon. That's because, on Sunday, I'm entered in the Columbus Marathon.

Notice my careful word choice. Not once was the word "run" used. Don't want to set the bar too high!

I do hope to finish somewhere in the 4 - 4.75 hour mark, but as long as I can get to the finish line, I'll be more than satisfied!

I distinctively remember, while struggling through a 3 mile training run back in May, thinking, "There is no way I can do a marathon." Instantly a thought came to me. "Chris, that's not what you are being asked to do right now. You just need to finish these three miles." A liberating thought that has made many months of training go by much easier. Unfortunately, that reasoning won't work on Sunday!

This calls for a new outlook. Sunday's race strategy is simple:

Run 13.1 miles. I've done that many times over the past few months.

Go to the car. I do that every day. Sure, it's parked another 13.1 miles away, but it's all the same in principle.

To pass the time, I'll be listening to everything from Lecrae to Les Miserable on the ole' mp3 player. I'll also have some time to pray for some special folks:

My church family. There are many, many people facing many, many challenges. Will praying for such things as encouragement, humility, holiness, healing, grace, and above all . . . God's glory.

A few special kids. Nicholas. Julia. Zachary. Lucy. Matthew. Many others . . .

Family and friends.

As for late-race motivation, I've got a few thoughts that I'd love to see come to fruition.

I'd love to cross the line and find my daughter. From there, I'd love to kneel down in front of here. OK, that's wishful thinking -- she will probably be finding me and helping me up. Either way, I hope to give her my medal. Jewelry has always been her love language.

From there, I will look my daughter in the eyes and say, "Honey, I want you to always remember that you can do anything He calls and enables you to do. There's no one else I'd rather have as my daughter. I love you." On second thought, I may go ahead and write all that out on a piece of paper and hand it to her. Oxygen may be at a premium.

I'm hoping Timothy will one day find encouragement in his old man who proves you don't have to be the fastest or the best in order to be loved! Just allow Christ to live through you and let Him work out the results.

And as for my wife, I'm hoping to cross the line to show my wife . . . I've still got it. I'm not sure what "it" is . . . and I can't say I never had much of "it" to begin with . . . but I suppose whatever "it" is . . . it's enough according to God! And I'm thankful it's been enough for my wife all these years . . .

On your mark . . . get set . . . go. Glory to Him.

(Below: A sign my daughter made for the race. Encouragement at its best.)

Update From Ron's Car Clinic

2010-10-15T21:42:00.002-04:00

Got a call a few hours ago from Ron's Car Clinic in Fairplain, WV.

Good news. The van lives to see another mile. Turns out the radiator blew but the engine survived. Have never praised God for a radiator until today. Very, very grateful. Thank you Lord.

And here I thought I would be the only one to run out of steam this weekend . . .

Suprise Pit Stop

2010-10-14T18:48:00.000-04:00

This morning, we headed out the door for a little road trip to Columbus, Ohio . . . as I'm signed up to run in the Columbus Marathon this weekend. As we walked to the van, my daughter said, "There is a cool truck stop in West Virginia. Can we stop there?"

Although I questioned how my daughter had become proficient in West Virginia truck stops, I said, "Sure." Anything to get us on the road.

Five hours later, while on Interstate 77, our van decided to conk out. No power, only smoke. Praise God we were able to make it to an exit and into a BP parking lot before everything died. Now what?

Just so happened that Ron from Ron's Auto Clinic happened to be getting gas. Ron got the car running enough to make it up the road to his garage.

Verdict . . . definetly a blown radiator and likely a blown head gasket. We will know tomorrow. From ther, who knows.

Since it was closing time, a woman named Rachel offered to take us back to the highway . . . to of all places . . . the truck stop our daughter requested to visit. She got her request alright.

So here we sit . . . outside Ripley . . . down by the highway . . . waiting on Grandma to pick us up in a few hours (thank you!!!).

Dog back home. Car in West Virginia. Family to Ohio.

Wonder what the weekend will hold? Trusting Him . . .

Duhhh

2010-09-28T21:40:00.002-04:00

Lying in bed with Timothy. Lights out. Conversation on.

Me: So how was preschool today?

Timothy: Good? We got to see a Prairie Dog.

Me: A Prairie Dog?

[Timothy's class had a visit from The Creature Teacher who brought with her a fury friend.]

Timothy: Yep. Two of them?

Me: Well what do Prairie Dogs eat?

Timothy: Prairie Dog food.

[Duhhh Dad.]

I Like Ike

2010-09-28T20:23:00.002-04:00

From Yahoo Sports:

Ike Ditzenberger is like a lot of other 17-year-old American football players. He dreams of playing college football. He attends daily practices. Most of the time he toils away in offensive drills. Then, on rare occasions, Ditzenberger runs into the limelight with aplomb. The description could fit thousands of American teenagers, except for one crucial detail: Ike Ditzenberger has Down Syndrome.

[Video link: http://www.youtube.com/watch?v=txMiQTBLhVM]

From My Heart: It has become both my experience and conviction that God uses disabilities -- more specifically those who live with disabilities -- to foster grace among others.

I have seen this in over and over in our journey with Timothy. I have seen this countless times in the lives of friends with disabilities. I see it clearly on this football field.

Some, in response to this video, have felt compelled to point out the whole event was "rigged", conveying that "it's not real football" and "it doesn't count". I beg to differ.

Rigged? Try boldly and lovingly given.

Not real? It's as real as it gets.

Doesn't count? Counts for much more than six points.

To see two opposing teams and a bleacher full of fans all drawn together in a spirit of grace . . . that's the power of a disability. That calls for profound honor.

From The Bible: May we see this more so in His Church . . .

"The eye cannot say to the hand, 'I have no need of you,' nor again the head to the feet, 'I have no need of you.' On the contrary, the parts of the body that seem to be weaker are indispensable, and on those parts of the body that we think less honorable we bestow the greater honor." - 1 Corinthians 12:21-22

Family Photos

2010-09-25T19:40:00.002-04:00

Timothy has a wonderful aunt! Among other things, she is an excellent photographer. On a recent visit to North Carolina, she took a few pictures of our family at a park near our house. Here are just a few . . .

The Latest Trip To Philly

2010-09-25T17:29:00.004-04:00

The time had finally come to return to Philly to ditch the wheelchair, shed the cast, and pull the pin. All in all, we were 3 for 3 with a bonus or two thrown in!

After an uneventful flight (the best kind) we made it to our hotel, one we had never called home. Our room was literally eye-level to I-95, right next to the Ben Franklin Bridge. Needless to say, sleep was not happening that night!

Dinner time came. Across the street was a "Dave and Busters" (which is essentially a Chuck-E-Cheese for grown ups). Not wanting to toss money into the wind, and not wanting expose Timothy to an enormous arcade while requiring him to stay in his wheelchair, better judgement called for a walk into the Center City district of Philly.

Although wheelchairs and sidewalk's made of brick as old as America don't gel all that well, we found a local dive which served grilled cheese and fries. Eating outside and able to count subway cars . . . Timothy was quite pleased.

From there, we were able to make contact with a family from our church who has spent many months at Children's Hospital Of Philadelphia. Five-month-old "Baby Lucy" has had two major surgeries in her young life, and she and her mom are hoping to return to Greensboro on sometime early next week. Having a free evening, Timothy and I were able to snag a cab and head over to CHOP for a quick visit.

Getting back to the hotel, we watched a classic Philly movie and called it a night. Timothy's last words before going to bed were, "Dad, I'm so excited to get my cast off." The next day would not disappoint . . .

We had the first clinic appointment of the day, so we were in and out before we knew it.

Cast got cut off. The pin (nearly half the length of his foot) got pulled from Timothy's middle toe with a set of pliers. We returned the "loaner" wheelchair. Got splints adjusted. Took a few spine x-rays. And no sooner than we had arrived, we were on our way to the airport in a cab.

As can be seen in the spinal images, Timothy has a scoliosis in his upper spine. It is holding at 40 degrees for the moment. The lower spine is staying put. Considering it contains aisle 9 from Home Depot, it is not expected to do much shifting!

For now, we simply wait and see what is next. More than likely, there is a spine surgery in our future . . . but for now, we are going to enjoy the freedom of Timothy's foot. We're also going to enjoy giving Timothy a much needed bath!

Could It Get Much Better

2010-09-25T17:22:00.002-04:00

In Philly . . .

. . . guys night in the hotel room . . .

. . . getting the cast off tomorrow . . .

. . . turn on the TV . . . and could it be?

Could it get much better?

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Lord of My Rings

2010-09-15T22:21:00.000-04:00

A number of weeks ago, I innocently asked my wife, "Hey, have you seen my wedding band?"

"No, why?" she replied in a tone indicating she knew exactly how I would answer.

"Well, I can't find it, or the other ring I wear," I answered, stating the obvious.

You see it was days prior that I had taken my rings of to go for a run, and was pretty certain I left them on the corner of the dresser.

"I'm sure they'll turn up," my wife casually remarked.

In case you are wondering why my wife was so calm about the whole thing . . . well, this wouldn't have been the the first time I lost my wedding band. Let me explain.

The first year of our marriage, I was out one Fall day, hiking and running around with our dog in 1600 wooded acres, when my ring somehow slipped off my finger. Uh oh.

Upon returning home and breaking the news to my wife, we were both distraught (especially my wife).

Early one morning a few days later, my wife got up and went out walking in a leaf covered field. She prayed the prayer I am sure everyone has prayed at some time or another. "Lord, please help me find ______." Moments later, she kicked a ring with her foot out from underneath a leaf.

69,696,000 sq. ft. - 1 gold ring = One praising wife

Although I still have that original ring, when Teressa and I renewed our vows two years ago, I got us new rings. It was my way of saying, "Knowing all we know about one another NOW . . . I'd still do it all over again like it was the first time."

I had a two year, loss-free streak going . . . that is until the fateful day when the wedding band (and a cross ring I wear) turned up missing.

For weeks, I went without wearing a wedding band. A strange feeling, yet I was to afraid to wear my original. I didn't want to push my luck.

The entire time, I kept insisting I left my rings on the corner of the dresser.

Well, the case of the missing rings is finally solved.

Teressa happened to be cleaning out the bottom of our hall closet and look what she found (picture above).

Hmmm. I wonder what happened here?

My guess is one boy (who we will simply refer to as T.L. to protect his identity) found two rings on my dresser and decided they would make for some nice bling to the hood of his Matchbox. Upon adding the bling, he took his Matchbox out for a cruise on the strip (a.k.a. hallway); however, rather than going low and slow, he exceeded the speed limit for polished wood floors. Immediately, his car spun out of control, veered sharply to the left, travelled under the closet door, and crashed into the back wall.

Out of sight, out of mind.

I'm redeemed. He's busted. All is well.

Look Up In The Sky

2010-09-10T13:30:00.006-04:00

Today has been the craziest homeschooling day ever. You see, on Fridays, I assume the role of teacher. In addition to math, spelling, and grammar, we tackle science. This year's science curriculum is Zoology 1: Flying Creatures Of The Fifth Day. Birds, insects, bats . . . if it has wings, we're tackling it.

Now last week's lesson was a big hit. In view of our reading on flight, aerodynamics, taxonomy, and the like, I took Timothy's big sister on a field trip to track the ever allusive Zenaida macroura in it's natural habitat. In layman's terms, I took her dove hunting. It was a perfect "hands on" project, which gave us a number of up-close observation moments.

OK, so the assignment wasn't technically suggested by the book, but what does one expect when dad's the lead science teacher?

All that being said, last week's lesson had nothing over what we experienced today. I am still beside myself over what took place . . .

Sitting outside, we reviewed a few terms and then hit the topic of instincts by reading Job 39:26:

"Is it by your understanding that the hawk soars, stretching his wings toward the south?"

Just then, a huge screech sounded, and out of the trees behind our house soared a Red-tailed Hawk. Timothy, along with his big sister and I watched as he soared up into the air, circled around a few times, and flew off.

Timothy's sister said, "Wow, that was pretty cool. We read it, and then it happened."

God scored a point on that one.

Next topic, endangered species. We read about how the Bald Eagle was once endangered, to which my daughter says, "Dad, look! Up in the sky! It's an eagle!"

I could not believe my own eyes. I literally did a double-take. Soaring overhead was a Bald Eagle - perfectly white head, yellow pointy beak, long brown wings, white tail. Close enough that we could make it out with ease.

My daughter said, "Whoa. It happened again. Dad, what's next?" At this point Timothy was down with ornithology.

God -- two points.

Next topic, extinct species. Specifically, the pterosaurs. AKA, flying dinosaur. I thought to myself, "Oh, this will be good."

How I wish I could have captured the expression on my kid's faces. They fully expected a 35-foot long winged dragon to come soaring over the trees. To be honest, I wasn't convinced it wouldn't happen.

What did happen, however, was quite odd. The Geico gecko flew over. I know it sounds unbelievable, but it happened.

We sat on our back patio and watched as five planes flew over our house and spelled out "Geico - More Than Just Car Insurance."

By this time, I was wise enough to grab a camera to get proof. Take a look below.

God completely stole the show, and my kids can't wait till next week's lesson. I must admit. I can't either.

Email subscribers, go to http://www.youtube.com/watch?v=2R_c_kEnsKc

Pasta For Dinner

2010-09-07T20:26:00.003-04:00

Timothy has always maintained a rather robust passion for eating pasta, as clearly evidenced throughout his young life. Tonight's dinner proved to be of no exception.

Let me set the stage . . .

We had finally made our way to the table for supper. Spaghetti for dinner. Earlier in the day, Timothy had gone to his pre-school class (wheelchair and all) for the first day of school, so naturally, we were all asking how his day went.

Timothy began insisting his surgeon (Dr. Van Bosse) had privately and expressly told him that it was perfectly okay for him to go down the slide at recess despite the fact Teressa and I remember the conversation quite differently. He was lobbying for "slide time" on Thursday.

Throughout his iron-clad defense that would challenge any legal mind, Timothy kept shovelling pasta into his mouth at a feverish pace.

At this point in the conversation, I casually took out my phone and discretely started rolling so as to capture the moment. Unscripted moments like this one are the moments we have come to cherish with our kids.

Classic Timothy.

(Be sure to turn the volume up so you can hear his final comment. Priceless.)

(Email subscribers go to http://youtu.be/d0KNhNJQYXQ)

Touring Philadelphia

2010-08-27T22:49:00.002-04:00

With our flight not scheduled until Saturday, we found ourselves with a full day to explore Philly.

Destination: Philadelphia Museum of Art.

Under normal conditions, there is no way we would turn our son loose in an building filled with rare, priceless fine art, but with Timothy confined to a wheel chair, we stood a fighting chance of getting out without breaking something! Opportunity seized.

Of course, no visit is complete without running the steps. Rocky never did this with someone on his back.

Now I'm not a big fine art fan like my wife, but I must admit, it was an amazing experience to stand in front of a painting from the 1400's and to see individual brush marks on the canvas. The Renoir exhibit was impressive. I was personally drawn to the art from the Reformation. Timothy was all about the swords and armor.

Of course, on the trolley over to Reading Terminal Market, we asked Timothy what his favorite part of going to the museum was. True to unimpressed four-year-old fashion, he simply replied, "Leaving."

Post Surgery Fun

2010-08-27T22:46:00.002-04:00

A bowl of ice cream and a visit from a therapy dog at the Ronald McDonald House. What could be more fun?!

Toe Surgery

2010-08-27T21:18:00.002-04:00

While yesterday held among the least complicated surgeries for Timothy, it proved to be one of the most difficult days for me. Let me explain . . .

Teressa finally fell asleep at 3:30am and I woke up at 3:30am and couldn't get back to sleep. One would think surgery would become easier for mom and dad, but it doesn't. Emotions churn.

We hailed a cab at 6am and were in pre-op by 7am. All was going smoothly until it was time to sedate. Timothy wasn't having it.

Seven people held him down and he fought them all off. Medicine was placed in his mouth and he spit it out. No go. The doctors told us he is at the age where he knows just enough to know something's coming . . . but not at the age to know what's coming is good for him in the long run.

After a brief huddle, the doctors came up with plan B. Next thing I knew, I was dressed in scrubs and carrying Timothy into the operating room.

The plan was for me to hold Timothy in my lap on the operating table while he would be asked to "blow up the blue balloon" through a mask. The old balloon-gas switcheroo.

The moment we entered the O.R. the entire mood changed. Folks were all business, as they should be. I sat down on the operating table, put Timothy on my lap and held his arms against his chest. On went the mask and he began to breathe. After a few seconds, I could hear and feel him let out a muffled scream, and then my son went totally limp in my arms. The medical staff directed me to gently lay him down on the table.

As I stepped back, I could see Timothy's eyes rolled back into his head. Then, someone took the place meant for a father, and I was gently escorted away.

Although I knew Timothy was in the best human hands possible, I cannot articulate how unnatural it was for me to leave. On the outside I complied . . . on the inside I revolted.

No sooner than I walked through the doors, I crashed emotionally. I could not put two words together without weeping.

I'm thankful for my wife. She was the strong one, as for the next hour, I cried. We sat, I cried. We walked, I cried.

On the way to get things settled in Timothy's room before he arrived, we "randomly" ran into Joe (Timothy's physical therapist who got him walking after his spine surgery). I made my best attempt to keep it together, but Joe could sense I was struggling.

Joe is a brother in the faith and a devoted follower of Christ. We have shared in many conversations about the Gospel, and sensing my need to be reaffirmed in Christ, Joe asked if he could pray with us. Joe led us into a room, and simply prayed over my wife and I -- reminding us of our Father's sovereignty and care. I know beyond any doubt that Joe was God's provision for us in such a weak moment. Thank you Joe -- and thank you Father.

Soon after we went back to the waiting room, we were called to post-op. Timothy was out.

The doctors warned us: the way a patient goes down is the way the patient will come out. They were right. Timothy went down swinging and he came out swinging!

Among his first words were, "Somebody call me a cab. I'm leaving!" That was followed up by, "Stop talking and get me a pair of scissors so I can cut my cast off" and "You better let me go by the count of three -- 1 -2 -3!" Seeing no results, he resorted to holding his breath. Classic.

Once we were able to redirect Timothy's energy toward meeting the qualifications for being discharged (and a touch of morphine), he became more manageable. His objectives were simple: drink, eat, and pee.

Surprisingly, by 4pm on the day of surgery, Timothy had done all he needed to do to get sprung. One more hurdle: physical therapy.

Timothy was given a walker and while giving it a whirl, he banged his foot and blood started dripping out of his cast. Not good.

The surgeon was summoned, and after inspection, all was deemed incidental. After consulting with the surgeon and therapist, we decided the best course of action is a wheelchair for four weeks.

All in all, we were told we would be in the hospital for 3 days, yet we got out in 11 hours. We were told Timothy would walk out when he left, yet he wheeled himself out. That's a wrap.

A special thank you to the many people who prayed for our son, and for the expertise and grace of the staff at Shriner's. God goodness on display.

Pre-Surgical Playtime

2010-08-25T20:22:00.001-04:00

Here in the Ronald McDonald House, we always meet so many special people going, coming, and staying. No better way to meet folks than during playtime . . .

Going
Tonight we met a 3-year-old girl (Heather, pictured with Timothy) who is going back home to Missouri after having brachial plexus surgery.

Coming
Arriving for surgery was a family from Reading, PA, whose daughter (5-months-old) will have heart surgery to repair a few holes and a valve. Pray for Alexia and her parents.

Staying
Met a family who had twins prematurely two months ago and have been here for that duration. One of the babies is out of the hospital, but the other is still gaining strength and will hopefully be discharged soon.

Out Of Line

2010-08-23T22:04:00.004-04:00

Ten little toes all lookin' at me,
guess which one gets surgery.

Yep. The third one from the left. Middle toe. Timothy's right foot. The one curled under. All of Timothy's toes are contracted to some degree, but the "middle man" needs to straighten his act. On Thursday, Lord willing, this little toe will get back in line.

While I am not looking forward to seeing Timothy laid out for a few days in the hospital (the process of surgical recovery is hard for our little guy), I am grateful for the many surgical options we have been given over the years.

Do pray for Timothy's surgeon, Dr. Van Bosse, along with Timothy's other doctors who will share with us more about what steps will be needed in the future to address various other orthopedic issues.

Boys Will Be Boys

2010-08-23T20:29:00.004-04:00

Three weeks ago, my wife and daughter left for a one-week faith journey to Guatemala. Their departure meant Timothy and I were on our own. I think this fact made Mama more nervous than flying, leaving the US, and possibly contracting Typhoid fever all combined!

As providence would dictate, our air conditioner gave up the ghost and temperatures began to soar. Not to fear. Male ingenuity kicked in as Timothy and I sat in front of our open refrigerator wearing boxers while feeding from the door -- whipped cream, pickles, butter, olives. No challenge was too great for us. Eye of the tiger, baby.

While I clearly received no parting instructions on nutrition, my wife did provide one simple task for me to accomplish while she was out of the country. Potty train Timothy.

Bye bye Toy Story Pampers. Hello Spiderman Underoos.

I seized the first opportunity to usher in this right of passage.

As Timothy and I lounged in the backyard, I said Timothy, "Now son, if you have to use the bathroom, you need to tell me. That way, we can go inside and use the potty."

He said, "OK Daddy."

After a few moments of playing, Timothy turned and said, "Dad, I think I have to use the bathroom." With that, he started to walk toward the house.

Seemed Project Housebreak was an instant success, and in a moment of overconfidence, I decided to call an audible and take things to the next level: Operation Pee Pee Tree.

"Timothy, come back here, buddy," I exclaimed. "Good job heading inside, but let's try something different. Instead of going to the potty in the bathroom, let's see if you can use the potty on that tree over there."

Timothy responded, "OK. I'll try my best, Daddy." What more could a proud father ask for?

Now in my defense, I did have a plan. You see, not only was I going to potty train Timothy, but I was going to impress my wife by teaching our son how to stand while using the bathroom. Made perfect sense at the time.

When Timothy arrived at said tree, he looked back at me as if to say, "What now?"

I said, "OK, bud, now use the bathroom."

He hesitantly dropped his britches and asked, "Like this Daddy?"

"Perfect. You got it bud. Now go ahead and use the potty," I replied.

Yet, out of habit, Timothy began to squat.

"No, No, Timothy," I interjected. "Today, we're going to use the potty like a big boy. You gotta stay standing up and use the potty on the tree."

Although looking rather puzzled, Timothy took a deep breath and said, "OK, Daddy. Here I go."

And in a moment of grand accomplishment, my son stood tall and used the bathroom . . . out his back end.

"Timothy!" I yelled, jumping from my chair. "You're supposed to pee pee on the tree!"

Timothy stated what had become obvious. "But Dad, I don't have to."

Operation Pee Pee Tree had failed. My wife was unimpressed. And now, we're all having to teach Timothy to sit down when he goes to the potty.

Surgery Next Week

2010-08-18T21:07:00.003-04:00

A quick update to say we have confirmed surgery for next Thursday.

Problem: One toe curled under.

Solution: Cut tendon. Shorten bone. Fuse joint. Insert Pin. Set Cast. Wait Six Weeks. Cut Off (the cast, not the toe).

Prayer: Obviously for Timothy's procedure and surgical recovery, but also opportunities to encourage and serve those whom we meet in the hospital.

The Overcomer

2010-07-27T23:57:00.002-04:00

A few days ago, Timothy seemed to realize he couldn't move his hand like his Pops. No problem, I gave him the assist.

Last night at bedtime, Timothy decided he would assist himself, thank you very much. Looks like I'm out of the picture . . .

http://www.youtube.com/watch?v=NMPMdlF4teg

The High Dive

2010-07-23T16:39:00.002-04:00

First day attempting the high dive . . .

Will he freeze up . . .

Drumroll please . . .

Tonight's Bedtime Prayer

2010-07-21T21:46:00.002-04:00

(Lights go out. Bed time.)

Timothy: Dad, we forgot to pray.

Dad: OK, buddy. You pray first.

Timothy: OK. God, thank you for my dog, thank you for chicken
coops, and thank you for Jesus. Amen.

(I don't even bother asking anymore.)

The Dreaded Day And The Grace Therein

2010-07-15T23:10:00.003-04:00

Shortly after Timothy was born and we learned of his genetic condition, I almost immediately began dreading two days in the future. The first was the day Timothy would realize he could not physically do something others could. The second was the day Timothy was picked on by someone else. I was convinced the first day would put a tear in my eye, and the second day would leave me slugging someone in the eye.

Although I suppose these are natural concerns any father would have after learning his newborn son has some "disabilities", I've since learned that living out of these concerns leads no where other than sinful worrying. There's no point in fretting about what might be, as I'll only end up missing the grace of what is.

That being said, one of those days has arrived.

On the nights I'm the one who puts Timothy to bed, the two of us will lie on our backs next to each other looking up at my fist raised in the air. Slowly, beginning with my thumb, I will then extend each finger one-by-one until my fist has been fully opened. As each finger extends, I will say these words: Jesus - died - for - my - sins.

Five fingers. Five words. Just as these words transform a closed fist into an open palm, so too, the truth of those words transforms a closed heart into a freed life.

After saying these five words and opening my hand, I'll once again close my fist. This time, Timothy will grab each of my fingers and straighten them one after the other, saying the words as he goes.

Jesus - died - for - my - sins.

If there is one truth I want my son to know, that is it. Hence, our little routine . . .

But last night, our routine changed.

Rather than helping me open my fist one finger at a time, Timothy decided he was going to open his own fist one finger at a time.

And he couldn't.

He had a hard time extending his thumb. When he finally did, he wasn't able to hold his other fingers down. His fist seemed to burst open, yet none of his fingers could fully extend.

Timothy intently studied his own hand as if to be thinking, "Why doesn't my hand do what my daddy's does?"

His wheels were turning, and my heart was sinking. I knew what was coming . . .

In his dimly lit room, Timothy turned his head toward me and said, "Daddy, I can't do it."

Oh how I hurt inside, yet outwardly I didn't seem to hesitate.

"Here, let me help you."

And with that, he made a fist, and I opened his fingers for him one by one.

Jesus - died - for - my - sins.

Since last night, part of me has avoided thinking about that moment, and yet part of me has been chewing on that moment (if that makes any sense). While I still ache inside, I'm struck by the grace of that moment.

Timothy's "I can't" was instantly met with "Jesus - died - for - my - sins." It's as if Timothy's disability was eclipsed by the reminder of Christ's ability. Timothy caught a glimpse of something he couldn't do at the same time he was hearing about what only Christ can do.

Timothy, little buddy, what you can or can't do . . . in the end . . . is not important. Christ has done what you and I could never do. He lived the life we were to live and didn't. Through his death and resurrection, he earned for us the forgiveness we couldn't. My greatest prayer is for you to trust in the Savior who died for your sins . . . and that despite what you may or may not be able to do . . . you will rest in what he has already done.

Until that time, I suppose our routine has changed. Rather than having Timothy open up my fingers, I'll gladly help him open his. Besides, it somehow seems more fitting that way, as with each finger, we'll together say, "Jesus - died - for - my -sins."

Dancing In The Minefields

2010-07-13T19:56:00.003-04:00

My wife and I met when I was 19 and she was 21. She's always quick to point out she's only 14 months older than me. I'm quick to point out she started out dating a teenager. Either way you spin it, our 16 years of marriage are nothing more and nothing less than a testimony to God's radical grace.

I love my wife. I am proud of who she has become and who she is becoming, particularly as we walk this road with both or our children.

As I watched the video release of Andrew Peterson's new song "Dancing In The Minefields" (off of his upcoming album Counting Stars) I couldn't help but think of where we've been, where we are, and ultimately . . . where we are heading.

Enjoy . . .

email subscribers, go to http://youtu.be/NtTa81LyuQM)

Watch & Learn

2010-07-12T20:29:00.002-04:00

Some things never change.

Tonight's Timothy "watch and learn" moment . . .

The Boys Of Summer

2010-07-09T11:39:00.003-04:00

As I was leaving for the store the other day, Timothy came running up to me in the yard.

I casually asked, "What' going on, big man?"

His reply: "I'm just throwing poo poo but it's too mushy."

I don't even want to know.

Oh to experience summer as a little boy.

Always dirty. Never wearing shoes. Falling asleep exhausted.

While I can't recall taking part in the past time of poo tossing (which doesn't mean I didn't) . . . I do recall spending many hours playing with my Star Wars action figures. Seeing this video brought back some of those memories (with a rather updated twist)!

Tonight's Prayer

2010-06-29T23:10:00.002-04:00

If there is one thing Timothy insists on, it is praying at meals. He will allow me and/or others to pray, but he insists on having the final word in prayer.

Tonight's "solo prayer" was priceless.

Timothy: "Dear God . . ." "Dad, your eyes are still opened."

Me: "Sorry. I was closing them."

Timothy: "OK. Dear God . . . thank you for going to the pool. Thank you for our kitchen . . ." "Mom, there's a fly on your head."

Mom: "Thanks son."

Timothy: "OK. Dear God . . . thank you for Jesus. Amen."

The Next Chapter

2010-06-29T21:40:00.005-04:00

Last Monday, Timothy and I headed out to Philly for a quick round of appointments in hopes of discovering what's next with Timothy's medical care.

Each time I travel with my son, I become more and more convinced he could make it from our doorstep to Shriner's Hospital without any assistance. I simply let Timothy lead the way through the Philadelphia Airport in order for him to hail his own cab. Although routine, every trip has its nuances . . .

As we exited the plane after having landed, Timothy stopped and turned back, only to say to the flight attendant: "Oh, thank you mister for my drink." To the plane itself he said, "And thanks plane for landing good." I witnessed the most weary of travellers crack a smile.

At the top of the ramp, Timothy pulled on my hand and said, "Dad, I have to pee-pee." I was proud of him for telling me, as we have been working to get him fully potty-trained (or house-broken as I say). Unfortunately, when the moment arrived for the "pee-pee party" to begin in the bathroom, aim was not much of a priority . . . and I got . . . shall I say . . . hosed down.

Strange. I packed Timothy an extra set of clothes in case of an accident, but I didn't consider packing myself an extra set in case of his accident.

With a devilish grin, Timothy said, "Sorry I pee-peed on you, Dad."

One stop at the airblower, and we were on our way.

Upon arrival at Shriner's, we went to the "splint shop" and picked up Timothy's new splints. From there, it was off to xrays before having our appointment with one of Timothy's orthopedic surgeons.

While waiting for the doctor to arrive, one of the nurses came in and with a commanding voice said, "Young man, where do you live?" It was obvious by her clipboard and pen, she was seeking to know our address.

Without flinching, Timothy replied, "I live at home."

Not to be deterred in gathering the basics, she continued, "How old are you?"

"Four", Timothy replied.

She probed further. "When did you turn four?"

Timothy responded, "On my birthday."

She gave up and summoned the doctor.

After the doctor examined Timothy, he broke things down for us into bite size chunks.

Hands
Coming along nicely. Keep stretching and wearing night splints.

Toe
Surgery in the next two months to straighten his middle toe. Cut a tendon, shorten a bone, fuse a joint, set a pin. One hour surgery. Six weeks in a cast.

Back
Lower back remains steady after surgical correction. Upper scoliosis is 39 degrees and holding (which is good news). The only option to correct things is surgery, so we'll take 39 degrees any day!

Knees and Hips
Due to contractures, Timothy continues to walk with his knees bent 15 degrees and his hips bent at about 20 degrees. While this requires his body to work a bit harder than most, Timothy simply goes and goes.
The doctor laid out a few options. One option was continual exercise and stretching.

And then . . . the doctor wielded his pen. He began drawing the lower extremities of a skeleton on a scratch piece of paper.

I admit, in that moment, I said a dumb thing. "Wow. That's a good drawing of bones."
Not only had I been peed on, but with those words being spoken to a trained orthopedic surgeon, I won the pea-brain award for the day.

He graciously thanked me for my compliment and then proceeded to draw lines across the femurs and knees, accompanied with these words:

"To straighten Timothy, we could cut both femurs in two here . . . and reattach them like this . . . and then we could put plates in his knees here . . . and tighten some screws here . . . and that should eventually help in straightening everything out."

After I regained consciousness, he continued: "These are relatively simpl surgeries for me, but they would be a bit hard on Timothy at this age -- so I'd rather pursue stretching and exercise and see how he responds."

I could not agree more.

If I had to sum up the trip, I'd say we know a bit more about what's next . . . and we know there are some helpful options available should we need them in the future. Through it all, God continues to remain gracious and true . . . and our son continues to embody an overcoming spirit . . . before all of which we stand amazed.

If you ask Timothy to sum up the trip, he'd simply say, "I flew on a plane, saw my friends, and peed on Dad."

(Below pictures: Timothy reading the flight emergency procedures. Timothy carbo-loading on a pretzel before x-rays. Timothy getting new splints. Timothy crashing in the cab after the carbs caught up to him. Timothy refueling before heading home.)

Come Fly With Me

2010-06-20T14:26:00.004-04:00

Yesterday evening, we joined two other families in having a picnic at Pace Airport in Ridgeway, VA. Pace Airport consists of a 3/4 mile grass runway and an aluminium hangar. As one of our friends was taking folks up in his ultralight, another gentleman invited Timothy and I to fly in his 1940's Piper J-3. Between holding Timothy and holding down my supper, I managed to take a video of the take off. Timothy's expressions were priceless.

The entire evening was nothing short of a lifetime memory.

Tomorrow, Timothy and I fly to Philadelphia for a quick trip to his orthopedist. I'm thankful tomorrow's plane will be a bit more substantial!

Dr. Seuss Does The Beach

2010-06-16T18:42:00.004-04:00

A summary of our recent trip to the beach, Suess-style.

Big fish,

Little fish,

Sissy's fish,

I'm a fish.

Song for Those with Disabilities

2010-06-16T08:29:00.000-04:00

I stumbled across this song, written by Bob Kauflin, which wonderfully captures my heart for Timothy. Better said, this song captures God's heart for Timothy and the many who live with disabilites.

Here are the words:

Within the womb I formed you
I fashioned and made each part
I thought of your fingers, your hands and your feet
Your mouth, your lungs, your heart
Though you might think that you’re different
I made you the way that you are
So you could discover the God who made you
And find out all I am

And though you might think you have limitations
There are no limits with me
When you turn your eyes to my salvation
Finally you will see

In Me, you have all that you need
In Me, you have all that you need
In Me, you have all that you’ll ever need.

And I’ve heard each prayer that you’ve called out
“Why did you make me this way?”
You may not completely understand now
But there will be a day
When I make everything known to you
And what you don’t now understand
You will see that I’m wise and I’m mighty and good
Just like all my plans
And if you trust in the work of my Son
One day you will see
That I’ve made you the way you are
To draw your heart to me
To draw your heart to me.

The song can be downloaded here.

Who's The Tall Kid?

2010-05-29T09:05:00.000-04:00

Timothy had his final program at his preschool this past week. A rousing performance of "God Made The Rainbow."

He was the one in the line-up who is a foot taller than everyone in his class.

I love this picture our friend Michelle took, as it captures the moment Timothy located his daddy on the front row to his right. All singing ceased, as Timothy let out a LOUD, "There's my daddy! Look, there's my daddy!"

The expressions of the children to his right and left are priceless.

Oh, that I would live with a reckless abandon similar to what Timothy modelled . . . seeking and acknowledging, with joy, the Father.

Heading Home

2010-05-17T20:07:00.001-04:00

Sitting in the airport after a long but productive day in Philly. Bringing home two new hand splints and four Philly pretzels.

Timothy's hands looked a bit tight, but we're told as he hits growth spurts, this will happen. The splints should help.

Timothy's feet are big and crooked! It seems he outgrows splints the moment they leave the showroom floor. We head back up in one month to get a new pair.

The surgeon did indicate a necessary surgery in the next few months. Basically Timothy has one toe that is curled under. The doctor will cut a tendon, insert a pin through the toe and cast him up for a few weeks. I lobbied for late summer so the pool is not ruled out. He obliged!

A great day with Timothy. He turned to me and said, "Dad, you're my best buddy." Can't ask for more.

God continues to be so good. We are blessed beyond measure.

(Above: A painting that caught my attention in the hospital)

Pray For Nicholas

2010-05-10T22:28:00.001-04:00

God's Word states, "A friend loves at all times, and a brother is born for adversity." On both counts, we have seen God's provision for us as a family through the friendship He has allowed us to have with the Richardson family. Tonight, we stand with our friends in prayer as their son Nicholas has surgery tomorrow.

Nicholas (pictured with his awesome big sister) will have what is called a nissen fundiplication, designed to treat a hiatal hernia as well as gastric reflux. Although this is a fairly simple surgery for many, Nicholas' care tends to be far more complex.

Please pray especially for Nicholas' respiratory system, as any type of invasive surgery comes with an elevated risk of pneumonia. Also, pray for pain management, as Nicholas' body has a hard time processing high levels of pain.

Nicholas is expected to be in the hospital for 14 days, so it goes without saying, please pray for Nicholas' parents (Steve and Lisa) and their three other children as well.

We love you Richardons.

"Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." - Isa. 41:10

Timothy's Face

2010-05-09T16:05:00.003-04:00

Between the melted chocolate and dried blood, Timothy's face is quite a site.

An Asperger's Interview

2010-05-07T15:13:00.001-04:00

Found myself endeared to this interview between a mom and her 12-year-old son with Asperger's.

Q&A from StoryCorps on Vimeo.

This Was Grace

2010-04-22T17:46:00.003-04:00

Amen and amen. My heart leaps and my spirit sings at the message of this video!

Friday Night Baseball

2010-04-09T20:39:00.000-04:00

Wild man at the Grasshoppers game.

How Many Tracks Can One Boy Use?

2010-04-09T12:24:00.003-04:00

Eat Your Carrots

2010-04-09T09:59:00.000-04:00

Me: Timothy, eat your carrots.

Timothy: I can't. My eyes hurt.

Me: Timothy, eat your carrots.

Timothy: Daddy, I can't. My teeth are busy growing.

Me: Timothy, eat your carrots.

Timothy: I can't. I'm sick.

For the record . . . no carrots were eaten. Also, for the record . . . no ice cream came after dinner.

FORE!

2010-04-03T10:40:00.000-04:00

This morning's conversation . . .

Me: Timothy, you need to stop playing golf in the house.

Timothy: I'm not. I'm just hitting this ball with my club.

Justification at its best.

All Boy

2010-03-28T20:23:00.000-04:00

Timothy insists on installing a new door stopper in his sister's room.

Ironic. Tonight is a full moon.

Ouch

2010-03-21T10:31:00.001-04:00

Being out of town with the family this Sunday morning, I decided to do a little homespun church service around the breakfast table.

Simple stuff. One story from Mark. One song. One prayer.

Timothy's feedback: "Dad, I want to go to a different church."

Ouch.

A fresh opportunity to rest in His acceptance this morning.

Move Out Of The Way

2010-03-20T20:54:00.001-04:00

I actually heard this today . . .

Me: Timothy, did you just hit your sister with a rock?

Timothy: Yes.

Me: Why did your sister get hit with a rock?

Timothy: Because she did not move out of the way fast.

Ask a simple question. Get a simple answer.

Bristol Baby

2010-03-19T16:15:00.001-04:00

Timothy cheering on the no. 18 - M&M's car.

Chocolate Ice Cream Puts Hair On Your Chest

2010-03-15T20:40:00.001-04:00

Not really. But it does taste better bare chested.

Sir T On His Throne

2010-03-14T19:06:00.000-04:00

After church, Timothy and I implemented our "man plan" for the afternoon. Momma always gets a bit worried when it is just the two of us. Not sure why.

Our task was two-fold: get Timothy a hair cut and purchase a new toilet for our bathroom. A rather unlikely combination, but all the makings of an afternoon adventure.

Timothy said hello to his "stylist" and quickly raided the lollipop basket. He seemed content, so I kept feeding him sugar on a stick while his stylist chopped away. Unfortunately, the falling hair and the sticky mouth quickly got together . . . and Timothy eventually walked out with a clean crew cut and a scraggly goatee.

Donning his cherry-flavored facial hair, we made our way to Home Depot to make the all-important toilet selection for Timothy's (and his sister's) bathroom being remodelled this week. Choosing a "porcelain god" provided an opportunity to praise the One, True God, as I actually stopped in the toilet aisle and had a moment of worship. You see, while Timothy delighted in running up and down the aisle as fast as he could, I paused to be reminded this was the same little boy who doctors said might not be able to walk. Thank you, Father.

As I wrestled "Timmy's Potty" (as it was affectionately named by my son) onto the oversized cart, Timothy simultaneously mounted his throne.

Pulling a new sucker from his pocket (it seems he grabbed a few for the road), he squealed "Choo Choo" at the top of his lungs. Apparently, that was my cue to begin moving, as he was now playing the role of train conductor eating a Dum-Dum.

So there I was, carting my fruit-scented, sucker-sucking, fuzzy son riding atop his new potty as he pumped his fist in order to sound his imaginary train whistle.

Someone once said, "Boys are noise covered in dirt." I could not agree more.

Unfortunately, Timothy's train got derailed. Seeing someone I knew from church on aisle 7, I stopped on a dime to say hello. Timothy, on the other hand, kept moving. A rather ungraceful dethroning.

Not to worry. No tears fell. The lollipop stayed in the mouth. Just a bit more dirt added to the jeans.

All part of one afternoon adventure . . .

Say What?

2010-03-11T09:05:00.001-05:00

Well, Timothy's hearing test results from today show he has good hearing. Selective, but good!

Say Again

2010-02-24T10:08:00.000-05:00

An actual dialogue from our house last night . . .

Daughter: (yelling from bedroom) "Dad, how do you spell 'deaf'?"
Me: "Death?"
Daughter: (yelling louder from bedroom) "No, 'deaf'!"
Me: "Debt?"
Daughter: (yelling even louder from bedroom) "NO! 'DEAF'!"
Me: "Oh, 'deaf'. D-E-A-F."
Daughter: (long sigh of fruatration)

Oh, the irony.

Cheese Lover

2010-02-22T22:11:00.000-05:00

Timothy is a cheese lover if there ever was one.

My son . . . for the fromage fan and fighter within . . . this one's for you! (Email subscribers, click here)

Hit The Sofa, Dad

2010-02-22T18:47:00.000-05:00

4:02 am. Timothy wakes us up to let us know he can't sleep. Classic.

I make my way to the kitchen for a bowl of cereal. At that hour, I wasn't quite sure whether to label it a late-night snack or an early-morning breakfast.

Either way, I eventually found my way back to my bedroom only to find a little boy (along with his little four-legged sidekick) sleeping soundly in my spot.

Lying on the couch, I became convinced it was all part of his master plan.

Blast Off

2010-02-20T12:48:00.002-05:00

Having astronomy as a school subject for our daughter this year, we decided to build a rocket for a little hands-on experiment. Rather than opt for the water rocket option suggested in our daughter's textbook, we opted for the more explosive variety.

Enter the Taser. Estimated altitude: 1100 feet.

A successful launch. A successful flight. A successful parachute deployment. A successful wind, carrying our spacecraft into the next county.

Oh well. It was a blast (pun intended) while it lasted!

Party Time

2010-02-16T18:17:00.000-05:00

As I walked out the back door, heading off to work, I distinctly heard Timothy say these word:

"Let's get this party started."

Lord, enable my wife to survive today.

Sunday Night Family Meeting

2010-02-14T20:13:00.000-05:00

After the Daytona 500, we gathered for our regular Sunday evening family meetin'. Review the week past, preview the week ahead. Eat sweets in the process.

With Anna Ritchie serving as ice-breaker chairman, she asked, "If you could change your first name to any other name, what would it be?"

Teressa: "I'd be Alice."

Anna Ritchie: "I would like to be Amy."

Chris: "It would be Colt for me. Timothy, what about you? What would you want your name to be?"

Timothy: "Jesus."

Show-off. Meeting adjourned.

A Touch Of Irony And Gratefulness

2010-02-04T17:42:00.005-05:00

Before heading off to the office, Timothy and I got into a little wrestlin' match on the bed. As a result of the battle, Timothy fell back on the mattress and grumbled, "Ouch, my back."

Apparently Timothy landed on a toy ambulance he had brought with him to our match (which I'm convinced he was hiding as a secret weapon). Without delay, he rolled over, popped to his feet and pounced . . .

As I took hold of Timothy's leg to launch an all out tickle assault . . . my thoughts took hold of Timothy's comment.

"Ouch, my back."

Oh the irony. It was one year ago today that Timothy had the first of two spinal surgeries.

As I recall, THAT resulted in a big, "Ouch, my back!"

"Ouch, my back." Not only did I detected a touch of irony in his words, but I sensed a touch of gratefulness in my heart.

Thank you, Father, for where we were . . . where we are . . . and for being with us along the way.

(Below: A year ago . . . and a few days ago)

Lewis Church

2010-01-31T12:38:00.003-05:00

Being snowed in and having church services cancelled, we attempted to do something as a family.

Our daughter, the consummate planner and decorator, was left in full charge of room set up and worship service order. Timothy was in given the task of opening prayer. Mom was responsible for worship leading (or so she found out), and I was responsible for the Bible lesson (or so I thought).

The service began with Anna Ritchie and Teressa singing a rousing (and may I add unique) rendition of "How Great Thou Art," with Anna on the dulcimer and momma on lead vocals. What a joyful noise.

From there, we popped in a CD and had the "pro's" lead us, borrowing from recent worship sets at our church.

Timothy jumped into action and decided he would claim the role of "preacher" and he did not disappoint (as you can see in the pictures below). Not sure what all he was saying, but he did not lack in animation . . . and every now and then, we caught the word "Jesus."

After momma read a Scripture, I convinced Timothy to at least sit on my lap while I led us in a discussion of 1 Corinthians 10:31-33.

The question posed was simple: How can we each live our life to show God is most important rather living as though we are most important?

Timothy's answer: "Jesus." I guess he's figured out that seems to be the best answer to life's questions.

Anna Ritchie's answer: "Well, I guess the next time I want to hit my brother, I could see that it isn't that necessary." We saw it as a good starting point . . .

Meanwhile, Timothy (still in protest that I took his spot) decided to poop on my lap.

All that said, we persevered . . . deciding we would close with a family hug and go out and play in the snow for God's glory by:

1) Thanking Him for His gift and creation of snow.
2) Enjoying each other, putting the other first.
3) Being mindful of our neighbor and thinking of ways we could display that God is most important.

God, in and through the craziness of this morning . . . may You be glorified.

Wide World Of Winter

2010-01-30T18:52:00.008-05:00

The Thrill Of Victory . . .

(Timothy's sister and a friend owning the slopes as they cruise on her great-great-grandfather's vintage sled.)

. . . The Agony Of Defeat . . .

(Can you say wipe out?)

. . . And A Face Only My Wife Could Love.

(Our dog getting in on the action.)

The Butter Bandit

2010-01-18T18:20:00.000-05:00

The Scene:

Top shelf of the refrigerator door.

Exhibit A:

A stick of butter, suspiciously openned, with finger marks throughout.

Exhibit B:

A 3-year-old son with one very greasy index finger.

The Verdict:

Guilty.

The Sentence:

Stomach ache.

Filled To Overflowing

2010-01-12T22:49:00.003-05:00

Tonight was a guy's night at the Lewis household, as the girls went out for coffee. Needless to say, I can't say Timothy used soap during bath time, and teeth-brushing . . . well . . .

As Timothy and I cuddled in bed, we read from my favorite children's Bible, covering the story of "The Terrible Lie."

Adam and Eve chose to mistrust God and believe the lie that they could, in effect, be complete without Him. As the narrator puts it, "A life without [God] wouldn't be life at all."

Nevertheless, Adam and Eve tasted . . . Man fell . . . Sin entered . . . and God came seeking.

In the face of rebellion and brokenness, "God gently clothed them and then he sent them away on a long, long journey -- out of the garden, out of their home."

And then the line that gripped our attention:
Well, in another story, it would all be over and that would have been THE
END . . . but not this story.

In spite of everything, "God would love his children -- with a Never Stopping, Never Giving Up, Unbreaking, Always and Forever Love."

And of course, the lie of the serpent was trumped with a promise of God:

I'm coming back for you!

Something about tonight . . . lying with my son . . . telling him about the Son . . . gave me a great fullness.

With that, I reached up and turned off the light.

"I love you Timothy."

"I love you too Daddy."

From full to overflowing.

Actual Dialogue From Father/Son Trip To The Grocery Store

2009-12-11T18:12:00.001-05:00

[Travelling in pickup truck]

Timothy: Dad, where we goin'?

Me: To the grocery store.

Timothy: Why? We have cookies at home.

Me: Timothy, we have to eat more than cookies.

Timothy: Why?

Me: Trust me.

[Enter into grocery store]

Me: Timothy, stop picking your nose.

Timothy: Why? It's stuck and I have to get it.

Timothy and Sister Get Elfed

2009-12-08T21:12:00.003-05:00

I don't think Timothy's neurosurgeon would be too happy with this one!

Send your own ElfYourself eCards

Nativity Crasher

2009-12-07T20:40:00.001-05:00

I didn't remember Spiderman being included with Timothy's nativity set?!

Christmas Tree Fast Forward

2009-11-28T18:36:00.005-05:00

Christmas tree in a hurry.

(Email subscribers will need to view video at http://www.timothymyson.com/)

The Great Turkey Bowl

2009-11-26T19:28:00.003-05:00

After a large lunch and a small nap, we headed outside for a little family rivalry. Boys against girls. The Great Turkey Bowl.

Timothy dominated:

3 rushing touchdowns, 4 sacks, 2 fumble recoveries, 1 bruised mama.

The B-I-B-L-E

2009-11-18T19:38:00.003-05:00

Patrick Looney, a member of our church, died tragically yesterday. Patrick (and his wife Karen) have been very faithful in serving preschool children on Sunday mornings. Not only has our son greatly benefited from his ministry, but we as a family have regularly felt . . . or shall I say . . . heard his influence.

For weeks now, Timothy has made an ongoing habit of bursting into song.

"The B-I-B-L-E" . . . "This Is The Way We Go To Church" . . . the hits just keep on coming. And coming. And coming. And coming.

Singing. In the car. In the bath tub. At the dinner table. At bedtime. After bedtime. In time out. Many times we have attempted to locate an off switch, but to no avail!

This past Sunday, being out of town, we had a make-shift family worship time. We naturally deemed Timothy our "worship leader" as he led us in a medley of songs!

I was deeply humbled today to discover Patrick is the one who has been teaching our son these songs. He has not only impressed wonderful truths into our son's heart and mind, but he has indirectly and frequently pointed us as a family to Christ through the songs voiced by our son.

Thank you, Father, for your ministry through your son Patrick. We mourn deeply with Patrick's wife and daughters, and we rest fully in the grace of Christ.

Here is Timothy singing one of his greatest hits . . . (email subscribers will need to go to www.timothymyson.com to view this video).

Pumpkins

2009-10-30T22:42:00.000-04:00

Late night . . . pumpkin guts everywhere . . . but we have a finished product.

Revolve and Rotate . . . NASCAR Style

2009-10-23T18:45:00.000-04:00

Being responsible for teaching homeschooling on Fridays, I was charged with the task of teaching the difference between rotating and revolving as it relates to astronomy. Being a concept that can prove to be confusing, I decided to provide a lasting visual illustration courtesy of NASCAR.

Travelling to Martinsville, VA, we watched stock cars "revolve" around the infield as they qualified for Sunday's Sprint Cup race. A few times, we saw a car "rotate" as it got loose in the corner.

Works for me.

OK, so it was a stretch . . . but what do you expect when dad is in charge?

It was a joy to watch my two kids express such intensity for their racing (as you can see below).

Timothy got to sit in the M&M's car in honor of his favorite food group. In addition, he got an autographed pit crew hat from David Ragan, who raises money for Shriner's Hospitals.

All in all, a great day . . . although we have some school work to do this evening.

I Need Jesus

2009-10-19T21:46:00.003-04:00

Upon arriving home from work this evening (and shortly thereafter hearing from the doctor that both kids have a touch of pneumonia), Timothy met me at the back door almost in a frenzy.

"Daddy, I need Jesus! Daddy, I need Jesus!"

At first, I wasn't sure what I was hearing. For clarity, I asked, "Did you say, 'I need Cheez-Its?'" After all, crackers are his favorite food group.

"No. I need JESUS," he responded in frustration.

"You need JESUS?" I asked, just to be extra-sure.

"Yes. I need JESUS," he replied.

To be honest, I wasn't sure what to do or say next; however, before I could respond, Timothy took me by the hand and began leading me down the hallway.

"Daddy, I need Jesus," he continued.

Taking me to his room, Timothy dropped my hand and pointed.

"Daddy, I need Jesus."

Rather confused, I looked in the direction he was pointing . . . and low and behold, there next to his bed was a Fisher Price catalog turned to a page with a nativity set on it. And guess who was in the center? You guessed it.

"Daddy, I need Jesus."
__________________________________

After chuckling, I did find myself praying for Timothy in a new way later this evening . . .

Father, may Timothy live a life dependent on your Son. May His heart cry out in all circumstances (whether prosperity or adversity) . . . I need Jesus.

May he know and walk daily with the Jesus. Not the plastic Jesus so popular in American Christian culture . . . the Jesus who melts when in heat and can be easily tucked away for safe keeping. May he know and walk daily with the REAL JESUS . . . the risen, reigning, LORD.

That Time Of The Year

2009-10-19T18:08:00.000-04:00

In the doctor's office after work with two sniffling, feverish kids. The masks they are required to wear are such the fashion statement . . .

Curved In On Ourselves

2009-10-14T21:56:00.003-04:00

A portion of Michael Horton's book Gospel-Driven Life became all the more real to me given our our experiences with Timothy's spinal surgeries . . . and more importantly, given my need for Christ.

Paul and his fellow apostles knew that they were by nature – - like the rest of us – - bent in on themselves. And picking up on a phrase from Augustine, the Protestant Reformers said that as fallen sinners we are all “curved in on ourselves.” Born with a severe case of spiritual scoliosis, our spines are twisted so that all we can see are our own immediate felt needs, desires, wants, and momentary gratifications. But the gospel makes us stand erect, looking up to God in faith and out to the world and our neighbors in love and service. Not every piece of news can do that, but the gospel can . . .

Like a branch that has been bent out of shape, we fall back naturally to being curved in on ourselves unless we are being pulled back constantly to raise our eyes up to God in faith as he has clothed himself in the gospel of his Son.

Pasta Night

2009-10-02T19:21:00.003-04:00

If there is one thing Timothy knows, it is pasta . . . as is obvious in this video.

New Shoes

2009-10-01T17:36:00.001-04:00

We are home (YES)! New shoes. New splints.

Hold On

2009-10-01T14:35:00.000-04:00

Not too sure about the bus.

Blow

2009-10-01T12:57:00.001-04:00

In the cab on the way to the airport, playing a new game he invented . . .

Put the sticker on your nose and see if you can blow it off.

Three miles . . . no winner . . . but it looks like he is about to pass out!

Bite Your Head Off

2009-10-01T10:20:00.002-04:00

Timothy is presently going through a bag of animal crackers and biting the heads off of the animals. He's on to something . . .

Maybe the airlines should hand out bags of animal crackers rather than peanuts in order to give weary travelers a means of expressing frustation.

Why Not Be Different

2009-10-01T10:20:00.000-04:00

Who says a patient sticker has to go on your shirt? Timothy is insisting it go on his nose.

The Heavens

2009-10-01T08:43:00.001-04:00

The heavens declare the glory of God, the skies proclaim the work of his hands. Psalm 19.1

Up And Back

2009-09-30T21:25:00.001-04:00

Early Thursday morning, Timothy and I fly to Philly for a doctor appointment and a splint pick-up, only to return home by dinner. A quick trip with no wasted time.

Of course, other than in the area of diapering, steady movement is always good when travelling with a toddler!

Looking forward to the adventure.

God Doesn't Like Ugly

2009-09-25T18:37:00.000-04:00

Since we have been studying the Byzantine Empire here at Green Valley Academy, we took a little field trip to the Greensboro Greek Festival. Opa!

Before chowing down on gyros, we took a tour of the local Greek Orthodox church, learning about the rich symbolism in the church's architecture and design. I was surprised how engaged Timothy seemed to be along with his big sister.

From there, we went home to finish up our science lesson, as we have been learning about the planet Mercury. Having little atmosphere to offer it protection, Mercury has been pelted with asteroids over the years, resulting in a crater-covered surface.

As a hands-on activity, my daughter and I decided to "make craters". Taking a huge bowl of flour outside, I instructed Anna Ritchie to go into the yard to find a rock. We would then toss the rock into the flour . . . and presto . . . instant crater.

So . . . off she went, returning with rock in hand.

Well, that was . . . until her rock was soon discovered to be a piece of dried poop from our Boston Terrier.

I laughed! She shrieked in disgust! A priceless moment . . .

Running inside to wash her hands, I followed her in to offer a good ole ribbing.

Entering into the bathroom where Timothy and Teressa were, I proceeded to say, "Anna Ritchie was told to get a rock and came back with something quite different!"

My wife, in defense of our daughter remarked, "That may be, but while you are picking on your daughter, did you realize are standing barefooted in a puddle."

Sure enough. Timothy had tried to use the potty, and missed. I was standing squarely in the middle of "Timothy tinkle" . . . being reminded: God doesn't like ugly.

Foul Ball

2009-09-08T21:37:00.002-04:00

Q: What does Albert Pujols of the Saint Louis Cardinals, a fan's bloody face, Down Syndrome, and a foul ball all have in common?

A: God's Providence

Time spent reading this story is time well spent.

Timothy The Scholar

2009-08-29T22:43:00.000-04:00

Came home from work last week, and found Timothy in the "school room".

He decided to pull out an ESV Study Bible, summit his sister's stool at her counter-height desk, and begin quietly reading.

OK . . . so he was just looking at the color maps, but the sight was priceless.

Our Recent Trip To Philly

2009-08-29T20:52:00.000-04:00

A week ago, we returned from a round of appointments in Philadelphia. Being at the end of the summer, we decided to make the journey a family affair by taking the entire family.

Apart from a visit to the Philadelphia Zoo, which happens to be the oldest (and on that particular day, the hottest) zoo in America, our visit was primarily filled with medical assessments centering on three areas:

Spine
Timothy loves his neurosurgeon (as do we), and the entire way to Philadelphia, Timothy was a broken record: "Go see Dr. Danni. Go see Dr. Danni."

As Dr. Samdani entered the room with his team of residents, Timothy shouted, "Look! Dr. Danni has friends!" All those years of medical school, only to be labeled a "friend"!

Upon looking at Timothy's x-rays, Dr. Samdani concluded Timothy's spinal fusion had healed perfeclty to the point of not needing any more back braces or protective devices. FREEDOM! In essence, Timothy was given the "all clear" . . . at least for the short term.

Timothy does still have a scoliosis and lordosis in his upper spine,. Should these curves increase significantly, surgery will be required, as such an increase could significantly compromise his heart and lung function. That being said, his upper spine has shown no signs of curvature increases over the past 6 months, and there is even the potential the curves may actually reduce on their own.

Either way, Timothy will require another surgery at some point (minimum 2 years) to simply remove some of the hardware in his spine. If he can get to age eight (when the human lungs fully develop) without any major spine changes, he will be able to further postpone any additional surgeries.

What we took away was simply this: Timothy is free to run, jump, tackle, and climb free of devices . . . and simply be a boy!

Hands
Timothy's hand surgeon happened to be in the clinic, and he graciously came by to give Timothy the once over. He thought Timothy's hands looked remarkable, with no need for additional surgery. He did, however, fit him for a thumb splint to get his left thumb sticking out further when he makes a fist. Although he has the physical ability to put his thumb in its correct position, he prefers to tuck his thumb inside his fist. His splint (called a "Joe Cool") will encourage him to give folks a hearty "thumbs up"!

Lower Extremities
Of his three appointments, this one represented the largest unknown. Timothy's lower extremities have never been fully examined, as conventional wisdom has led to us postponing such exams until his spine was more stable. Unfortunately, since Timothy's spine surgeries, we have noticed his feet turning in more and more, so we were a bit concerned as to what the doctors might find.

Were his hips out of alignment? Were his leg bones twisted? Were his knees rotated inward? Were his ankles contracted? All of these questions were on the table and in our minds.

After conducting his x-ray examinations, the doctor prefaced our conversation with this statement: "When it comes to walking, Timothy will probably lose a point or two for style, but that's OK!" We agreed, as we are very confident any style deductions will be more than made up for in personality!

He continued: "After examining Timothy's lower extremities, his hips, knees, legs, and ankles look to be very healthy given his syndrome. Everything is aligned properly, and there is no evidence of fixed contractures. So at this point, there is no need for any surgical correction."

Whew.

The doctor went on to tell us, by and large, what has happened is this: In order to compensate for his spinal curve over the years (which threw his center of gravity off significantly), Timothy has learned to propel himself very effectively with his "little toe muscles" rather than his big toe. Talk about resilient.

Try it sometime. You'll find your feet turning inward . . . and if you do it long enough, it will curve your feet as well! A la Timothy.

In essence, Timothy's muscles have grown and stretched in abnormal ways, thus we will need to correct everything with splinting. Beleive me, we'll take a splint over surgery any day!

Timothy was fit with a new pair of splints (which will fit completely inside his shoes), and we will return to Philly in a month's time to pick up his splints and to have them properly adjusted.

Once they are in place, we have been encouraged to get Timothy active in as many physical activities as we can. Of course, Timothy needs little encouragement from us in this area. It seems to be his specialty.

So, to recap:

- No surgeries
- Two splints
- Six hours of DC traffic
- One great visit to Philadelphia!

We'll take it.